Migraines

Post migraine exhaustion…
Been trying to finish this tiny portion of apple-cinnamon-porridge for the past hour or more… Some migraines leave my body in a right state and it takes a couple of days to recover. I feel hungry but too nauseous to eat. I know that eating is the only way to stabilise my body so I keep trying.

I get different kinds of headaches. Having had headaches since childhood Ive learned to distinguish the different types and sometimes that helps me look after them better.

I also get different kinds of migraines. I get hormone related ones which are pretty awful but usually I can do some stuff. They feel like my liver has decided to stop working and my body is full of toxins and the migraine is a kind of rebooting of my body.
Then I get migraines from eating stuff I shouldn’t have though it’s not always easy to predict if I’ll get one or not… They feel like my stomach is shouting at the rest of my body and my gut stops working so everything else stops working too. It literally feels like the pain in my head has travelled from my stomach up along my spine and into my head. These ones often pass if I manage to get some salt and sugar and stabilising foods like butternut squash, potatoes and sweet potatoes. (That kind of food can also help with the hormonal migraines I find)
Then there are tension migraines that usually start as a headache and develop into a really bad headache with migraine like features.
And finally there are the m*****f***** evil migraines. The superior migraine of migraines. The ones where there is nothing I can do. Nothing brings relief. And I just have to wait and wait and wait. Time stops existing because there is only this moment of pain and then the next one. And the next one… And I whine and I moan because I don’t know what to do. But that doesn’t change anything and it’s too loud anyway so I stop. And even though I’m in a dark quiet room, everything is too much. My own breathing is too much. The sensations of my body is too much. Movements make me throw up. The throwing up is not like normal throwing up. It’s like my body goes into spasms and I can barely breathe. My body will keep trying to throw up long after it’s emptied itself. These migraines seems to be like a trauma response. If I’ve been doing too much and gotten too intensely overstimulated. It’s my body’s way of stopping me and screaming at me. At times it can feel like my body is incredible furious with me and that there is nothing it can do but go into migraine mode.

With some of the other migraines it’s a relief once they start receiding. But with this one the pain goes away ever so slowly and I continue to feel weak and nauseated. I also feel like it could get worse again if I do too much so recovering is a slow and careful process.

So I have to be patient and I try to accept that I have to slow down for a couple of days. Not easy, though. Things I need to do. Things I want to do.

In the aftermath of a migraine I try to appreciate the migraine as a teacher. It tells me about my limits (however annoying it is to become aware of limitations) and it teaches me patience. It also helps me refocus and think about what my priorities are – what is most important for me, here and now. It also teaches me to have a very nuanced perspective on pain and appreciate times when I am in less pain.

When self-care bites

Yesterday self-care was like looking into the dark abyss – yesterday self-care meant making a painful decision. Only two-three options to choose from and they all sucked one way or the other… My head, heart and gut strongly disagreed on the way to go, so what to do?

When in doubt I listen to my gut.

Even though my head and heart make much better arguments, I have learned from experience that that wordless wrenching feeling in the pit of my stomach is the one to go with.

I cried and cried and cried last night, totally despairing that I had to make this decision. I wanted to stick my head in the sand AND soldier on pretending everything would be fine. But there was no way around it. While I was dissolving in tears I had moments of hoping that the crying would sort things out for me. Or that I would have some amzing insight into a way forward. But the crying didn’t change anything. I still had my crappy decision to make.

My back injury has flared up and it means that I am in pain from the chest down. Doesn’t matter if I stand, sit, lie or walk – it hurts all the time, just in different ways. Pain killers don’t make a difference and the pain affects my cognitive functioning leaving me in a bit of a haze. It also hurts emotionally because I’ve been doing well for more than a year now and been getting back into ballet, so it feels like a massive set back. And the uncertainty is painful as well; whether this will last for months or if it will get better within weeks. Once it took over a year and the fear is always that it won’t get better this time…

Thursday and Friday this week my partner and I have put on a two-day course in London on Compassionate Communication Skills in Mental Health Settings. We’ve been wanting to do this for a long time and was excited when a friend, who is a certified NVC trainer, was up for doing this with us.

I woke yesterday hoping my back might get better during the day but as the evening came nothing had changed. I was feeling sad and moody, annoyed with myself for not having done enough to prevent this flare up…  I’d sat down with my partner to find something to watch together when I suddenly found myself saying “I wish we weren’t going to London tomorrow.” Until that moment I had been in denial about the effect the pain had on me. And it wasn’t till the words came out of my mouth that I realised I had to decide whether to go to London or not.

My three choices were: 1) to go and do everything as planned 2)to go but be less involved in the training 3)stay at home.

My heart wanted to go. “Go!Go! Go!” It said. “Everything will be fine. You can’t miss out on this, there is so much to learn.”

My head wanted to go but take it easy. “You need to learn to be more resilient and this is a chance to thicken your skin a bit. You can’t keep bailing out when things get tough. You might always be in pain so you have to learn to deal with it”

And my gut… My gut was just full of this sinking, wrenching feeling at the thought of the long drive, sleeping in a different bed, being nice and sociable, facilitating training, negotiating space and roles with my co-facilitators and keeping my head focused while managing my pain.

I knew my heart and head were right. I could do it. But it would undoubtedly be at a cost. All three choices would have difficult consequences.

At the moment I feel like I am in shock from being in pain again and I know that I would have to dissociate in order to go and do the training. I dont mind dissociating – it is very useful at times like this – but then there is always an aftermath that I will have to take care of. Maybe if I had had a week to gather myself it would have been more manageable.

So for now I have chosen to go with my gut, stay at home and get reacquainted with my pain-managing skills…